Pink, not just because it's pretty. I have a 80% chance of breast cancer in the next few years and am supposed to get a preventive mastectomy soon.Because it gives me hope, helps me fight, it shows support for everyone else.

I have peutz jeghers syndrome. It's a rare blood disorder inherited by my dad. There is no cure and it causes many types of cancer. A double mutation on a tumor suppressor gene causes polyps to reoccur throughout my gi system. I've had many surgeries and require ct scans, mris, pill cameras, biopsies, and more. I have nightmares of being cut open during operation. I wone up during several procedures. My dad is in remission from cancer and I am hoping someone sees this who knows something.
 

I don't mean to ramble and never talk about this here ...just trying to find anyone who has it. I don't know anyone else it's too rare.
 

#####
 
No it's not contagious and I look perfectly normal on the outside...except for dark freckles in my lower lip..
 

Thanku to anyone who reads / responds...I found polyvore while in need of a distraction. I thought being connected to ppl around the world I would at least try.
 

Sorry if tmi.=/

11 comments

egagarza
Wrote two months ago
Praying for your daddy, cancer is an unfair illness that takes away our most loved ones ;(

egagarza
Wrote two months ago
I hope you get well soon! :)

fluorescent-last-kiss
Wrote 7 months ago
Darling, I hope all the best for you. You are an inspiration. Keep strong!!

vkmd
Wrote 8 months ago
Thanks to add my too!

eula-eldridge-tolliver
Wrote 8 months ago
Thanks for adding my sets to this collection and I'm so sorry to hear of your hardship. I think this site was created for all of us that share some problem and were searching for something to relieve stress at the time. Of course, some are much more serious than others. I'm sure when the creators created the site they never thought about the type of designers that would get drawn to the site. It's a wonderful community of support on your dark days and your happiest days. Please know you will be in my thoughts and I'm only a msg away should you ever need a shoulder to lean on.

misnik
Wrote 8 months ago
My heart breaks for any who is suffering from cancer in any way...so evil and unrelenting and unfair....I see several specialists through mayo clinic and they say things like " I am sorry, we don't have a crystal ball" =( I know it's hard enough to find cures for common diseases like diabetes...there is funding for that at least bc it's taking so many lives..It's still hard, waiting, hoping some advancements will be made on rare diseases and blood disorders. Having genetic testing helped my being diagnosed and that scared most of my family on my dad's side to get checked out. My dad was close to dying and he was scared, in denial and didn't know until I convinced him to see the Dr. It's scary

momoheart
Wrote 8 months ago
Yes, one of my cousins had to have many surgeries as a young child because of his father's past exposure. It's a sad thing but he seems to be ok now and is doing well. His brother did not have any issues at all. You never know what will happen.
My best friend lost her father to an inoperable brain tumor when we were in middle school. Even though not all cancer is hopeless, her father's was a long and painful struggle for their family, because they knew in the long run there was nothing they could do to save him. I don't know when and if we can eliminate all cancer, but I hope that we can make some advancements soon.

misnik
Wrote 8 months ago
Several ex classmates of mine have birth defects from their dad's exposure to agent Orange=( big settlement in court but nothing is worth suffering like they do

misnik
Wrote 8 months ago
@momoheart THANK YOU so much for responding and sharing with me..and for the kind words and support. I hope the very best for you and yours too. Hugs and dm me any time :-)

momoheart
Wrote 8 months ago
Thanks so much for adding my set. Also I'm sorry to hear about your struggles. 3/4 of my grandparents and also two uncles have had cancer. My one uncle quite suddenly was diagnosed with stage 4 cancer and died 6 months later which was really sad, but due to his exposure to agent orange in the Vietnam war. Most people in my family have been able to get tumors removed and eventually recover. I hope that you will be able to get good treatment and stay in good health.

misnik
Wrote 8 months ago
#wearpink #Wednesday'swewearpink

95 likes


Love this look? Get more styling ideas

Continue
×