I have peutz jeghers syndrome. It's a rare blood disorder inherited by my dad. There is no cure and it causes many types of cancer. A double mutation on a tumor suppressor gene causes polyps to reoccur throughout my gi system. I've had many surgeries and require ct scans, mris, pill cameras, biopsies, and more. I have nightmares of being cut open during operation. I wone up during several procedures. My dad is in remission from cancer and I am hoping someone sees this who knows something.
I don't mean to ramble and never talk about this here ...just trying to find anyone who has it. I don't know anyone else it's too rare.
No it's not contagious and I look perfectly normal on the outside...except for dark freckles in my lower lip..
Thanku to anyone who reads / responds...I found polyvore while in need of a distraction. I thought being connected to ppl around the world I would at least try.
Sorry if tmi.=/